Breaking the Silence, Building Community Living with Pernicious Anemia and Advocacy in the U.S.

Join us for a special online seminar with Julie Wichlin, PAS trustee and founder of the U.S. support group. After decades of unexplained symptoms and misdiagnoses, Julie was finally diagnosed with Pernicious Anemia in 2021.

In this session, she’ll share:

• What it’s like to live under a cloud of mystery symptoms for years
• Observations on how PA is diagnosed and treated in the U.S. — and how it compares with experiences in the UK and elsewhere
• The common obstacles patients face: outdated tests, inconsistent access to injections, and a system that often dismisses multisystem symptoms
• How community support and advocacy turned frustration into action
• Why the patient voice matters — from personal journeys to global awareness

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